Hiding Behind the Foliage. 

Nobody sees the real face of this disease.  People see an amazingly strong girl with parents forced into strength by circumstance. They see a girl that looks poorly at times and parents with heavy eyes. What they don’t see would break them.  People don’t see the fear in the eyes of a child that can’t […]

Rocks on the Track

On Tuesday we had the pleasure of celebrating Evelyn’s first birthday. We woke at 0800 and got everything ready for her special day. Balloons had to be inflated, banners hung and presents arranged for her to get stuck in to. We felt lucky to be at home as opposed to marking this momentous occasion in […]

The Tallest Tree With The Farthest View

The last few days have brought a torrent of information as well as offering insight into how the next couple of months will pan out.  Late afternoon on Wednesday, after a pleasant morning of playtime and fun, Evelyn’s temperature hit a high. As an oncology patient, this automatically merits a blood culture test in addition […]

Meeting the Arbourist

For the first time in many weeks, last nights sleep was uninterrupted and deep. Having confirmation that Evelyn’s chemotherapy is working provided a much needed high that I am yet to fully come down from. Waking up this morning, something felt different. For one I overslept; the alarm on my phone didn’t rouse me and […]

A Clearing in the Forest

We approached the doors of the hospital at a time before most of the doctors arrived for their day’s shift.  Upon signing in and getting comfortable, the gravity of the days tribulations fully dawned on me.  “This is it, we’re going to find out whether this treatment is working” I said to my wife, Caroline. […]

My Daughter, My Hero

Hi there, my name is Jon and this blog is centred around my daughters journey in the last few months. In April, at 9 months old, my beautiful daughter Evelyn was diagnosed with Neuroblastoma. Neuroblastoma is a cancer that affects the nervous system in children. These tumours can present on the spine, neck or in […]